LHON - MEGA UPDATES!!
Published 2022-10-13
LHON lieber's hereditary optic neuropathy legally blind lh o n interviews multiple sclerosis LHON plus Harding's syndrome
All Comments (6)
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That's another great question! What does everything look like to you when you lose your vision?
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Cool this looks great
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Just some general questions for anyone who has been lucky enough to gain some patient back. Have you got any flutters or flashes of light throughout the day? Have you taken any idebenone? If so, how many milligrams a day? Any other vitamins or therapies that could help? What was your vision like before? And what is it like now after you have gotten better? Have you lost any color vision? And have you been able to get it back? How long was the duration of having the Blindspot or scotoma?
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My daughter suffering LHON
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Is one eye better than the other ?
