Lupus & You: Lupus and the brain

It's crazy having to write things down that I wouldn't think that I would forget

During a severe flare, i become mistrustful and suspicious. I wish that was addressed as much as cognitive functions.

I'm sickened by all of this, as I clearly had lupus when I came in the hospital in tears at 15, 23.5 years ago, and any doctor with half a heart or sense would have had me tested and checked for autoimmune issues, as my skin was burning and couldn't even wear my school shirts, I couldn't go outside in the sun without pain and couldn't see, on and on, the whole darn list and then some, and it's only gotten worse over the years. But "I was too young to be sick" and instead sent to phychiatry and told I was "depressed and anxious as well as agoraphobia" they ruined my life. All because I had no parents thar cared about me to fight for me and stand up for me and left to "trust" the random doctors those days. My God with what I know now, I have some of the most severe lupus/autoimmune disease in general I've seen from a myriad of people's stories now. How can they do that to a child? I trusted them? I'm now 38 and have SUFFERED and thought I was a FREAK, hiding in bathrooms with burning skin and chest pain, ugly sores and rashes all over my body, my eyes began going and now are so bad, seizures and my gosh so much pain, and confusion/brain fog, lethargy....headaches.. How can one just be told they are mentally ill, when it's not true....and have all symptoms of complaint to be physical yet be thrown on dangerous psych meds. I didn't even know what lupus was until finding people online and realizing their stories were mirrors of me and learning my mother who was nowhere had autoimmune issues and my "father" arthritis and psoriasis and so on. I've been so sick...and had to go on disability by 30 and seeing what's so clear now and how it could have been avoided or better quality of life and now 38, 23 years later I don't even know what to say or think. I have been crying and my virtual doctor brought this up over COVID and I thought nothing of it. I've thought I was a freak and "crazy" ...lazy... I'm a sweetheart of a man, never hurt a soul and feel so let down and have nothing in life as I've been too sick to do anything of note after things fell off a cliff after 30 and I couldn't even fight the flares and confusion and myriad of 18-20 rotating symptoms.. Not to mention the awful mental health meds I was wrongly given....that made me worse and they would just give me more and more and same result until I refused anymore after 10 years or so. I don't get this. I'm nobody and I can see clearly this is something that should have been looked into for me and never was, and noone is held accountable. My abusive parents that would tell me I was lazy or a let down, and didn't care I was suffering or wanted to listen to me qndnin fact I became scared to even speak up and suffered in silence eventually. I now see many are dismissed when it comes to this. I can't understand and I don't know what to do this feeling is painful. How can it be possible.

8 was diagnosed with systemic lupus erythematosus & lupus nephritis… God Almighty still continues to fight for me🙏🏾🙏🏾🙏🏾.SLE has caused other multiple diagnosis .. I’m grateful… yr video made a lot of sense & I think that I also started having brain fog” …

Thyroid Problems It is believed that about 6% of people with lupus have hypothyroidism (underactive thyroid) and about 1% have hyperthyroidism (overactive thyroid). A thyroid gland that is functioning improperly can affect the function of organs such as the brain, heart, kidneys, liver, and skin. As a retired nurse and lupus patient- I can vouch for the addition of Vit D to your nutrition regimen. My endocrinologist tests this level for me and advocated higher dose of Vitamin D, protein, and B& C vitamins.

Brain fog, severe migraine, depression, insomnia and narcolepsy… and the neurologist told me it’s irrelevant I’m just stressed out from work !!!!!

I am from a Caribbean island have lupus and do have brain fog i forget about things I am about to say.hope it doesn't get worse.

Kimberly Bryant thank you for sharing your story I’ve been afraid to learn about the disease SLE LUPUS I’m for OKLAHOMA

Hi my name is Yolanda Greer & I'm from Texarkana Texas,and I was diagnosed with sle.lupus

Yes ma’am I’ve been having brain attacks for years too and seizures and I was having a seizure one night and the next night I end up having a stroke I end up in the hospital and they could not find out what was wrong with me but when I look back at my problem with celiac and adrenal and thyroid problems as my doctor told me years ago that I could end up with lupus I have not had a test run on me yet but I’m almost positive I have that I have all the symptoms and you are describing me and I haven’t heard any other people having the same symptoms as me except for a few that has lupus where I feel like I have inflammation in my brain and it is attacking my brain

Yes I struggle with brain fog cause of lupus

Having brain glitching 😫 feels so weird! Trying to get into neurology to see what’s going on! I hate Lupus! Just praying I don’t have a stroke.

I been living with lupus for more then ten years So I just recently released form the hospital do to serve dehydration and they did an MRI and found white brains lesions I suffer from brain fog

That brain 🧠 fog is terrible and annoying I been getting it alot lately, I been having burning sensations with tingling and numbness in both legs with weird eye pain with some blurred vision, I have blackouts sometimes where I go paralyzed until the inflammation goes down, my new neurologist told me that it's not no surprise and is not uncommon for lupus to do things like that, he's going to run test on me to see if I have any lesions in the brain and spine. I run high fevers with headaches off and on every day just about with body aches and extreme fatigue. My lungs hurt with short winded feelings.

I am having the same issues with my brain now .I have had Lupus since I was 27 I am now 50 I get a lot of headaches as well as smelling smoke all the time . This really drives me crazy . The meds don't seem to be working for me . I don't know what else to do anymore

Hello, I'm a lupus survivor from the great state of Michigan. I love reading during all four seasons:) Great information and resources!!

Thanks

Can lupus impact your thyroid and parathyroid? If so, what is the course of correcting/healing this issue?

I have lupis and diabetis 2 conflickting diseases ...how to take care and manage it

Yes