Diagnosed with ALS - Now what?

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Published 2020-07-28

Diagnosed with ALS - Now what? This is the first question that families are faced with moments after receiving a terminal diagnosis. The feelings of overwhelming fear and frustration rise to the top of the list.

This video was shot approximately four weeks after my diagnosis in 2012. It was really the inspiration behind the start of A Life Story Foundation.

I hated the , what now, uncertainty. I wanted to make a change. I wanted to disrupt the ALS community. We want this channel to be the go-to resource for ALS patients.

Stay in touch!
Website - www.alifestoryfoundation.org/
Facebook - www.facebook.com/KevinSwanNLS/
Instagram - www.instagram.com/a_life_story_foundation/

All Comments (13)

@_DrDrakeRamoray 3 years ago

This dude is still alive after 9 years. Can't move but he's alive.
@julieswan1928 3 years ago

He had such a great voice ..still has a great message! Share and subscribe, stop ALS from taking so much away!
@MrSwany1227 3 years ago

Finally found that lucky lady you were looking for!
@RaMM0nE 2 years ago

Thank you for all the work you do! Love watching your videos and I hare them with my family affected with ALS. God bless you amigo!!!
@heatherr1141 3 years ago

This is awesome and you are so brave! Thanks for sharing your story and journey
@prettypumpkin6891 2 years ago

I hope you are doing okay. My this are with you my stranger.
@kristenvarga910 3 years ago

What a lovely lady you did find!!
@danyalmarie14 3 years ago

You and Shaina inspire me daily!
@shainaswan4796 3 years ago

This is helpful. It is super strange to watch you speak...but such a great message!
@geeyaboo1017 3 years ago

When you were first diagnosed did you try any medications that help stop the progression if you dont mind me asking
@lisawelch6948 2 years ago

How to use a Phillips cough assist machine
@ghirardellichocolate201 3 years ago

I think the answer is Freshwater Australia Mint soap, as little as few applications. Hope this helps. #Open Veins#$