My Horrible Abdominal Pain Turned Out To Be CANCER - Alli | Rare Appendix Cancer | The Patient Story

Published 2024-07-19
Alli Macken was diagnosed with Stage 4 Appendix Cancer nine years ago. Initially thought to be colorectal cancer, further tests revealed the rare appendix cancer.

In this cancer vlog, Alli shares her journey battling cancer, the importance of finding a supportive community, and her determination to live for her family. She emphasizes the significance of seeking second opinions, advocating for oneself, and viewing cancer as a chronic illness rather than a death sentence.

Thank you, Alli, for sharing your story to help others.

#appendix #appendixcancer #rarecancer #cancerpatient #cancersurvivor #patientstories #thepatientstory #cancertreatment #cancerprevention #cancersymptoms

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Chapters:
0:00 Meet Alli
1:08 My first symptoms of appendix cancer
4:45 My cancer diagnosis
7:58 My chemotherapy treatment
10:05 Found a 12cm tumor in my abdomen
14:33 Diagnosed with cancer again
16:47 My third cancer diagnosis
18:46 Surgery removed essentially everything
20:37 I'm reminded of my cancer battle every day
22:52 Stage 4 cancer is NOT a death sentence

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My Horrible Abdominal Pain Turned Out To Be CANCER - Alli | Rare Appendix Cancer | The Patient Story
   • My Horrible Abdominal Pain Turned Out...  

All Comments (21)
  • So glad you are doing well! I just found out today that I do not have to have chemo. Praise the Lord!
  • @KiKi70236
    I was diagnosed with AML in my bones last October . I opted for hospice right out of the gate at 65. They gave me less than 3 months and I’m still here in July. My reasons were 2 fold, being a chronic pain patient I was terrified my pain wouldn’t be treated and I’m single no kids and the type of mutation I have can only be done with a transplant and that means steroids and that was a no go for me. I’ve way out lived what the doctors told me. Each day is a blessing.
  • Thank You for sharing your story. What a beautiful Family. May you continue with good health. Positive energy from South Africa. I'm a twenty one year cancer survivor. 🙏🇿🇦🤗
  • @joystone5793
    What an uplifting story and viewpoint! Thank you for sharing your story, your pain, and your determination to have a positive view of your life going forward. May you be blessed.
  • This is heartbreaking. You have been through so much. I have had radiation as an infant due to tumors in my trachea, had a thyroid echo my due to pre cancer in my thyroid that would have become cancer if I didn't have my thyroid removed. I went through 2 surgeries and treatment for breast cancer 3 years ago. I didn't go through what you went through, but I am always waiting for something to happen. My family has a cancer gene for colon cancer. I have my colonoscopy set for August. I just put everything in God's hands. I am adding you to my prayer list. You are a strong, brave and amazing woman. God Bless You.
  • @indawhip9410
    I think it’s so scary not having any symptoms till it’s advanced
  • @ninajones1175
    I presented with abnormal appendicitis in the ER. After 3 days and an abnormal CT, they did laparoscopic surgery. I was told upon awakening that shockingly they had discovered my appendix was cancerous. It was fully encapsulated, black and flat and the doctor and pathologist were shocked. I never had chemo or anything because all the margins showed clear. I was checked at 6 months and at a year and then every year since. I am eternally grateful. Had I not insisted that they keep looking because something was wrong, it would quickly have gone in to my colon. My prayers are with you and yours.
  • Turning I'm sick into "I'm healing," and reminding yourself that" stage 4 is not a death sentence," sounds like good words to live by .. As someone who doesn't like to travel long distances and take a lot of time off of work it would be very tempting to stick to the nearest facilities but you raise a good point that those aren't always going to be the best options for specialized conditions.
  • Your cancer sounds like it is PMP appendeceal cancer (adecarcinoma) w/signet, goblet cells. I am also an appendeceal cancer survivor, but for neuroendocrine cancer of the appendix. I also have been NED for 7 years as well. Very recently I have started experiencing upper right quadrant pain (near gallbladder) with pain in the lower back. I know better to advocate for myself. I appreciate your honesty in this video!
  • @1234567marks
    What an inspiration this beautiful woman is, I had surgery for stg2 colon cancer 18 months ago, the lymph node histology done post op showed no spread of cancerous cells, so my outlook is quite good, admittedly you’re never truly in the clear with these things but it’s the best of a bad job!. How this lady must have felt when she was told of the cancers return I can only imagine, but look at what an intelligent and radiant woman she remains, a true fighter, fantastic, thank you for sharing your story 🙂.
  • This is so encouraging … I have a recent intestinal duodenal cancer diagnosis and I’m in my 80’s but everything you said is relatable. You have given me a rational way to view this. My summer of chemo has been a challenge but nothing like you have been through. You are so pretty, so bright, and such a loving wife and mother. I can relate to your journey .. 12 yrs ago I had double mastectomy. So that gun to my head as you put it is always tucked away in my thoughts and I try to balance it with affirmations, as I go through another cancer trip. I have a great family …. Thanks so much for sharing your story. Wishing you a long and pain free journey.
  • @mchapman9440
    My poor mama just passed away this year from appendix cancer. I'm so incredibly heartbroken.
  • @lora9664
    You have a beautiful family. Stay positive and live your life as best you can. God bless you.
  • @brooks6348
    I’m so sorry you are having to go through all this. Best wishes for continued good health. Going to a large cancer center with a doctor that treats your cancer is a matter of survival. Thanks for sharing your journey.
  • I agree with you that if you have a rare cancer you absolutely must go to a cancer specialty hospital if you can. I work at one, they have more things available to you such asmore clinical trials and they also perform a greater number of surgical oncology procedures as compared to a surgical oncologist at a regular hospital
  • God Bless you and your family! I wish you all the best! How courageous and inspiring a story is yours 🎉
  • I think you are very brave to share your story. Praying for you to continue being healthy and free of disease. May God bless you and your family. ❤
  • @Irishgrl59
    Alli thankyou for your story your children are so beautiful prayers for you and your family❤❤❤🙏