Sjögren’s Syndrome in Relation to Central Nervous System Disorders

Sjogrens has gone from Syndrome to DISEASE in medical literature. We need to have a support group and conversations with THE specialist. Patients need care. Not Prozac.

With sjogrens I have almost daily migraine, radial joint pain and constant fatigue. One day I feel and look great, next day 👎👎👎. Anyone else experience this?

God bless all of you with these terrible symptoms, whether you have a firm diagnosis or not. Reading through these comments is heartbreaking. I wonder how many are still with us, are any of you getting better? I’m so tired of this invisible disease and my family thinking there’s nothing wrong with me. 🙏

Dr. Julius Birnbaum specializes in both neurology and rheumatology and is a well of information for those of us who fall thru the autoimmune disease cracks of sub specialties. Wishing everyone well on their journey of accurate diagnosis and treatments <3

I’ve had a diagnosis of fibromyalgia, rheumatoid arthritis... Polyarthritis For years. I was hit by a car when I was 11. Had mononucleosis when I was 13. And I’ve recently been diagnosed with Sjogren’s, Addison’s, and thin persons Hashimoto’s. My blood work just came back compromised kidneys and liver. My brain fog is so bad I can’t even take care of myself much less all these diagnoses.

Thank you for your dedication and work in this field!

I’d concur with the nerve pain. And my first symptoms was aching in the spine and it feeling very cold.

It is effecting my lungs, heart, fatigue, migraines, pain in joints and muscles

I'm a Male who has primary sjogrens and this really is a daily challenge...under attack from head toe - invisible disease.

Severe Pain should NOT be treated with gabbapentin nuraughtin

My symptoms are my memory is poor, my nerves are through the roof, I had really bad pain in my knees now my heels and my hands , stinging eyes and a very dry mouth and most times with ulcers I feel sick extremely fatigued and headaches. I have itchy eyebrows which I wake up pulling hairs out and they are extremely brittle and the hair on my head are the same, so I figured I should look at buying a wig soon 😂😂

Thank you for all the time research and awareness Dr

I just read that NMOSD has an antibody they can test for. I'd love to know what that antibody is called. Can Dr. Birnbaum tell us?

I just started Dr Brooke Goldner’s hyper-nourishing protocol outlined in her book Goodbye Lupus. After only a week I’m already experiencing great improvement. I can finally sleep without the pain and burning in my feet. As a result I’m not as fatigued or mentally taxed during the day. I fully expect to go into remission.

Does anyone have painful bumps on their scalp?

Thank you so much! This is very informative. As a Sjogrens patient, there is very little, if any, understanding from most of the Denver neurologists and rheumatologist I have seen about what Sjogrens has done and is doing to my body. I am not even currently on any Sjogrens meds, from my rheumatologist. This is frightening to me because of the amount of issues I have. Please let me know if you have any suggestions for the Denver area as to specialists in Sjögren's syndrome and related autoimmune diseases. We have no John Hopkins related facilities here.

I feel myself getting weaker everyday. Why is it so hard for doctors to recognize my blood work doesn't lie. I have tried to get an appointment with him nut they said I couldn't because i already have a rhuematologist but she does nothing for me and I am getting sicker and sicker. What is the point of posting here if no one is going to respond to it?

I am untreated and getting very sick. I wish I could get help.

I've had Sjögren for 10 years, but never had any pain or nervous system disorder. Just sicca in my mouth. Bu I was always taking vitamin B.

I have sjogren’s and I have been diagnosed with Dementia. Could this be related to the sjogren’s?