How epilepsy changed my life

I've literally just gotten home from hospital after 9 seizures. Just knowing I'm not alone helps so much! I hope life is going well for you now man!

Also just want to let you know you're not alone. I was diagnosed with epilepsy at 16 and things have never been the same. I've been fighting this battle ever since.. I'm tired. I'm lost. I'm paying for better days for us all.

What you said about the anxiety and wondering if it’s the mind playing tricks on us or is the seizure gonna happen….you really never get used to it…but we stay strong my brother. We are the turtle, not the shell. But we pretected by god ❤️

From my experience with epilepsy , it feels like doors are being closed on me in life.

After having multiple TIA (mini strokes ) in 2023 December 2023 I had my first seizure. I'm documenting my life since. I'm 27 now and never saw my life like this but thankful for everyday and my family helps keep me mentally healthy while my physical body goes through so many changes. I hope my journey gives someone comfort peace.

It is like a death: shock, loss, denial & finally acceptance. I don't want to sit around thinking my life is through. Sometimes I do though.

I've just been diagnosed with epilepsy after two seizures. A lot of what you said Derrick, particularly, about being afraid to go out resonates with me. What I am processing about my diagnosis is an emotional rollercoaster. I loved your comment about a cleaner making a difference, total respect for that brother.

Thank you so much for this video. Makes me feel like I'm not alone, I actually sobbed watching because I could relate so much. I have a brain cavernoma which was diagnosed back in SEPT 2017 after a week of right hand twitches which became more frequent then spread to my right leg the night I had my one and only (known) tonic clonic seizure. My world turned upside down in the months after, the unpredictability of this condition, the side effects I experienced from all the different meds they trialled me on, being a mother and trying to hold down a job to help support my family along with my husband. My condition is pretty well controlled these days but recently I had a panic attack in my training classroom for a new job as I'd felt the symptoms of a seizure coming and therefore elevated the symptoms of a panic attack which in turn mimicked a seizure 😔 it's debilitating. Thank you again and for making me feel less alone 👏

I've had seizures since I was 10 or 11, just turned 24, I remember waking up in a ambulance and wondering why I was in there. Things really changed in my life. I had to stop playing sports or other hobbies, my friends and family started to treat me differently (not in a bad way). I try to continue life, be positive, don't let my seizures hold me back from my dreams in life.

Bro, this is the best video I've seen about epilepsy! I'm 47 yo and started having seizures about 6 years ago! Ive experienced everything you've said and now I know I'm not alone in this fight! Keep focusing on your talent! God bless you my brother, you and I will be healed! 🙏🙏🙏

Look bro I'm 44 years old and I've had epilepsy ever since I was seven months old and what you just said really made me feel good I appreciate the fact that it is someone who knows how I feel and how life treats me everyday and yes when I was working it was very hard to keep a job because people did not want to understand that every week or every other day you may not be able to work or work to your fullest but I know deep down inside many people have told me I am a wonderful person so keep up the good work God is with us all thank you🎉

i was diagnosed with epilepsy a little over a year ago, and had my first seizure about two years ago. i am watching this video because i started feeling my aura and needed to try to calm me down, this video was amazing and made me feel so valid and seen. thank you so much. 💜

Bruh this relatable af, should have more views. all love from the states 🙏🏽💯

hello I started having seizures at age 5 I am 57 years old now my childhood was spent growing up in the hospitals at age 10 they did brain surgery I wanted to just die when they did the surgery epilepsy was brought on by my mother she was into her drinking and drugs I did my best they told me I would never de able to take care of my self I fought hard to get better and go to school I went to adult school and then collage I finished adult school and collage I was having to many cluster seizures at and I stopped collage with a cluster seizure I had over a hundred seizure in 30 minutes they did brain surgery for the second time and that slowed them down to one attack a year I still have four or more seizures a month the Doctors could never get them all to stop completely if you are dealing with epilepsy stay stron and do not let your seizures win you win keep going. God bless you all.

Thank you for sharing this! It's a very scary thing to go through, and not enough information is out there for people to understand the point of view of the people who suffer and struggle. I truly am thankful for this message! Thank you! ❤️

i know your pain brother....I have had epilepsy now for 10years I am now59 .....i have struggled mentally with self doubt, anxiety ,depression, irritability and cognitive problems. and tiredness i have had problems with jobs, even a trade I had for 30years, i found i could no longer do I not been able to cope with simple cognitive thinking sometimes ,particularly as I get tired, and later in the day..This of course keeps the wheels of negative thinking rolling I do suspect the AED drugs s may cause some of these issues, its hard to pin down ,i have not had a seizure now for 2 years, which is a blessing...But I have realized, that everyday is a blessing , 'in all things give thanks"" we only have the precious present. There are people with far bigger problems than i have got .I am blessed to have no worries with finance's or general living . And joy of the lord is my strength ......the things i love doing making music , making beats playing instruments ,I am still able to do ..God bless those who struggle with epilepsy ....

Thanks for sharing. I got my first seizure at 25 years old. I was shocked and mad. Why me, why now, what have I done. The first stuff I started to learn and hear sounded like walls or things stopping my life. That changed with time and so did my feeling. It's been 3 years and I've gotten alot better. I have seizures in my sleep only but I'm still always nervous about it. We're in this together guys 💪

So sorry about your experience. I personally got diagnosed with epilepsy 10 years ago. One thing that gets me through it all (everything u described ) is believing that maybe the Man up above (God)chose me and many others so that when we do drop (convulse) in public or anywhere for that matter we give people the realization of life and how they need to be thankful and great full for every day they wake up to a new day. And that any day could be our last.

Thank you for your video it helped me realize that I am not alone in this fight. The anxiety and actually having my clonic tonic seizures sucks. For a while, i truly was giving up every time I woke up in a hospital. i would just tell them to let SUDDEP take me. I am glad my attitude is changing. This video helped thank you for your message. Peace to all

Thank you so much. I'm sorry it's been so rough. I have epilepsy it only happens at night time but I don't think alot of people understand it's not the same but it can be just as hard.