Ally Hilfiger on Lyme Disease

"It can kill your soul... Its lonely" Truer words were never spoken. Perfect description. We need more celebrities to bring awareness to Lymes

As a person battling with Lyme and finally diagnosed after over 15 years I GET YOU. Thank you of speaking out!

She verbalizes what we go through so eloquently. I'm reading her book right now, called Bite Me.....very well written. I'm so grateful that she is using her celebrity for Lyme Disease awareness and activism. God Bless, Ally. 💗

I was constantly called lazy by my family and friends, no one would believe that I felt exhausted. I had the bulls eye rash but never knew it was a sign of Lyme.

Thank you SO much, Ally!!! We 'Lymies' appreciate you!!! We need more famous people to step up and acknowledge their LYME disease.... Thanks from my heart....<3

This is the we exact interview I needed to hear. She is describing exactly what is happening to me down to being lost in the grocery. It is such a lonely feeling. Thank you Allie for sharing your story.

I have it now. This video. This is me. I'm in horrid pain, EXTREME FATIGUE, my blood pressure is extremely low and my pulse is high. It does kill your soul. She is so on point with this description of what Lyme disease does to your physical, mental and emotional state.

Medicine HAS to change. I am a designer also & have struggled for more than 10 years. I thank you for re-inspiring me to work at getting well.

It makes me so angry that there are people who will say that it's all in their head, or that they are just wanting attention, when people suffer from lesser known issues and diseases like Lyme disease. I don't have Lyme disease myself, but do suffer from chronic pain caused by severe restless legs syndrome. That's another one of those lesser known evils: restless legs. People don't understand and therefore judge or tell you to stop moving your legs. "Uneducated" is the perfect way to describe them. My heart goes out to anyone suffering from Lyme disease or any other disease or syndrome out there. Let's pray for a cure for all of it.

My daughter is suffering and the doctors are not listening to her it's infuriating.god bless you for the work your doing.

You are one of the strongest people ever.All of us with Lyme have to be strong in order to withstand the so called 'normal' life. From age 6-14 years old I was bitten multiple times per year. I have recently seen an old neighbor that still lives there and she has Lyme as well. Doctors have labeled it as MS, fibro, etc.There's almost no doctors connecting the dots these years as well.Social responsibility. That's wonderful. I feel each of us have that responsibility. I was robbed of a normal childhood and has kept me from living a normal life. I've been cut by tongue of the ignorant that have no idea what I've been through. I've suffered for around 30 years and got the diagnosis just August of last year. I've been doing all kinds of things for years to help myself without knowing what was going on. I've tried just about anything that would hit the market. I have found great progress in a program that other Lyme people are in and plan to go back to doing it soon. Above all we need prayer. That's what holds us together.

We are going through the EXACT same thing with Babesia and Lyme with my son going on 10 yrs (diagnosed 2 years ago). She is on the money on all of it. Horrible disease. Ignorant doctors and people. I am so grateful to Ally and her candidness.

Storys like these give me hope. Here in Arizona it is nearly impossible to find anyone to take me seriously and it makes me feel so defeated. I have hope that one day sooner than later people will become more knowledgeable on this disease and will be eager to find a cure so all of us Lyme warriors can live a normal meaningful life without all the symptoms lyme brings. Thank you for sharing your story it means the world to all of us who have silent voices.

She is unbelievably strong. I'm speechless. This is horrible and how she handles it makes me want to handle it on all levels.!

The Lyme denial is a shame in this country! I tested pos through Igenex last week.

Great interview, I have chronic Lyme 11 years before diagnosed as well. And you have a child! !! That gives me hope, I want children.

This is my exact story! Its amazing hearing someone who grew up on the other side "of the tracks" from me have the exact same story...thank you Ally :)

I was dx when I was 12 with Lyme back in 1990. Had a bullseye rash. The pediatrician thought it was caught in time. I was given 2 or 3 weeks of an antibiotic. I no longer have those records as they got lost over the years, but my mom believes the full course of treatment was done at that time. I’ve experienced all kinds of things over the years. Too many to mention, but I know my body has always stayed in a state of inflammation, and I have been affected neurologically as well. I was checked for MS, lupus, fibromyalgia, rheumatoid arthritis and the best they could give me was fibro. Some labs are iffy but not definitive. I also have a rare syndrome called RSD that I acquired at the age of 20 from a snowmobile accident. It stayed in my body and then about another 20 years later I got another injury that left me permanently disabled in my right hand and with severe pain. I live with chronic pain all over and sometimes I just wish I didn’t exist. For me, the hardest part is not having people who actually want to get down to what is going on or not getting the right dx. I haven’t been to any dr since 2017 because I’m tired of wasting time and finances. I cling to the hope that one day there will be more accurate ways to dx, along with better treatments for all those effected. Best wishes to all those who have grappled with Lyme. And thank you Ally for sharing your story and for using your platform to help others.

Thank you for sharing. I have had a very similar experience, maybe CF, maybe fibromyalgia, maybe R.A. The symptoms I have point to lyme or MS. The most difficult thing is finding a doctor willing to listen and help. I feel for everyone dealing with any of the invisible illnesses.

Pretty sure I'm going through mold illness. It's a lonely time. Just because you can't see it or understand it does not mean it's not real or it's just anxiety. Anxiety and depression is usually a side effect of Lyme and mold.