Race Against Time | Families with kids diagnosed with aging disease remain positive | Sunday Night

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Published 2018-10-21

Adalia and Meghan are two beautiful and courageous young girls who are growing up way too fast. Both have a rare and fatal genetic condition called Progeria, a disease that causes rapid ageing – 10-times faster than normal. Their life expectancy is very short, usually only into the mid-teens. But, as Sunday Night’s Steve Pennells reports, they are making every second of their short lives count. And the good news is, there’s now hope for a cure.

This story originally aired on the 21st October 2018. Sadly Adalia passed away on January 12, 2022.

Read more - 7news.com.au/sunday-night/every-day-we-try-to-make…

All Comments (21)

@newbieshort 5 years ago

GOD PLEASE FORGIVE ME FOR COMPLAINING ABOUT MY LIFE
@paindalo 4 years ago

‘What’s ur favorite thing to do?’ Eat,...Sleep,...do musicallys...and watch YouTube This girl gets me
@carlosthesciencebish3846 2 years ago

Rest in peace Adalia, your body may have been small but your heart,spirit, and will to live we’re huge
@uditagirish8799 2 years ago

Tha fact that she said that she makes people smile because she knows how hard everyone's life is. Broke my heart where as her life is the hardest and has gone through the most hardest times of all. Love her she is just awesome
@jazmineelliott2407 5 years ago

After hearing her life expectancy I understand why her mother didn’t want her to rush being twelve since she’s eleven 😭😭
@Bridget1113 3 years ago

How could anyone ever call this woman a bad mother...
@I_LOVEDOGGOS 1 year ago

How could anyone call this woman a horrible mother she’s amazing!!💗
@crystaldyer3735 1 year ago

Adalia had such a big personality and you can tell how much her parents loved her. I know they miss her terribly.
@lucyy2085 5 years ago

Can we talk about how amazing that mom is? She seems so young but she’s handling this little angel amazing.
@BurntOutAlien 5 years ago

Her mom probably was so strict on saying 11 because she knows the average lifespan is 14 and she doesnt want her to be any closer to it omg 😭😭
@AlyssaPlayzGamezz 2 years ago

Adalia was talented, beautiful and very strong to survive progeria for 15 years. Sadly she had passed away a bit ago, but she has touched millions of hearts 💕 now she is dancing away to all the music she loves. Rest In Peace Adalia Rose 🥀 we love you ❤️‍🩹
@Angela-dx6cs 1 year ago

Both these girls are extraordinary. Such wonderful spirits and inner strength. And the parents are extraordinary.
@user-cr5ui3wq6y 5 years ago

I can't believe that people are actually dissing the mother, while the only thing that she wants is her daughter to live life at the fullest.
@GotMeYouSneakyBitch 5 years ago

her friend is studying molecular biology to save her life. my friends don’t even ask if I’m okay.
@888liv. 2 years ago

She has such an amazing family! She’s kind, sweet and extremely polite! Her mom is an amazing mom!
@traceyventurehhs239 1 year ago

Adalia is so lucky to be born to that wonderful mother. I love the way she is so protective of her mum, just shows there bond. God bless the family 💕🙏
@animalsproductions2716 4 years ago

It disgusts me about the people who disliked this inspiring video
@haroldreginald1222 5 years ago

He's not her dad? Aww he treats her like she was his own daughter😭😭
@talha_games7143 2 years ago

I love Adalia and her mom. They always make people laugh especially Adalia. Her smile, being funny, dancing, and acting. All the joy everyone in her family bring always puts a smile on my face. :) god bless her
@nataliemay415 2 years ago

I lost my mum 9 months ago and that was painful, but to loose a child, heartbreaking. And what a lively young spirit she is.