An Interview with Josh Griffin: His Experience with 47,XXY

I found out I was xxy about 17 Year’s ago, felt different as a kid, but played sports in high school,football. Found out about this issue hen the wife and couldn’t conceive a child. Then found out and changed everything. Wife and I split, but I can understand now, she had 2 others kids after, which is awesome for her. Myself I didn’t want kids ,after I found out, hated the world, but eventually got over it. Now I’m 43, and love life. These days I’ve researched this issue but I guess it is what it is.... just live you’re life to the fullest and be happy, it’s all that matters.

This video had me in tears at the end. I am pregnant with my miracle baby. I was told I could not have children over 12 years ago and 2 days before my 43rd birthday I found out I was pregnant. Just started the second trimester. My obgyn suggested doing genetics testing through blood work because of my age and not being able to have children. I did the genetics blood testing and the test said my child has a high risk of having klinfilter syndrome xxy. I was told abortion is an option but I was also told these genetic blood test are not 100% accurate. I was offered more invasive test but they could lead to miscarriage. My husband and I talked and did some research. I have been watching videos of people living with klinefilter syndrome and learning so much. Being I feel this is my miracle baby I did not feel abortion was an option for me. I have always wanted to be a mother and it was so hard for me to accept the news I would never be one when I was told I could not have children. My husband and I are going to test our sons blood to get a more accurate result and go from there. Being that the genetics testing is not 100% of a diagnosis we do not know for sure if our son has klinefilter syndrome but we do know with having the higher risk we are learning and preparing our selves! At the end of this video is when my tears fell. I want to be those parents that are so helpful and supportive for my son! We have narrowed it down to two names for our little miracle boy! Ethan or Rayden! Thank you for sharing what your life has been like living with klinefilter syndrome. You are making a difference in this world! I love that you found a career that you love! God bless! 🥰

This guy is great. I enjoyed every word he said. What a GREAT speaker!

My husband has KS, I wouldn't chang him for anything. Thanks for this video !

He sounds like a really nice person.

Learning from our ups and downs and see the joy that comes is amazing. Great video!

Great video, well spoken, I agree ...anyone who has an obstacle is greatly served with parents or a network of support in place

Found out at age 66. It explained my whole life in this diagnosis, but didn't fix it. Still have untreated ADHD. But looking back over past medical records I found one physical done in the 1990's where my testosterone levels were at 120 ng/dl. Doctor never said anything about it! Prior to being diagnosed by my current endocrinologist I had a physical done by my GP. Testosterones was 80 ng/dl!! He said that was normal for my age as I should "expect to be slowing down as I get older". I knew enough at that point to seek out an endo to get it fixed. My most recent labs tell me I'm at 700. Never went back to that GP! Actually am using my endo as my personal doctor as she is very thorough.

Thank you sharing your story, truly helped me understand the complexity of this syndrome.

Thanks so much for this! You're an inspiration.

Wow. I started going to therapy 15, through to 45. Diagnosed with all the adhd, depression, ear problems, all the same. I’m 6ft 2, tallest in the family etc. Hate sports. Anyway, im 47, and diagnosed 2 years ago!

When he talked about having an invisible disability on a job, I could really relate. You're right. Employers really don't give a damn. I don't have kleinfelters, but autism and was fired from jobs (crappy ones, so no love lost) and it can really suck before you get a diagnosis and understand why. I'm glad you finally got employment that suited you. I'm retired and finally "working" at the thing I was meant to do and don't have to deal with their shit anymore.

Great Interview. I found out about my 47XXY at 50 years old ! There was no excuse for Doctors to not find out about my condition as I was an Airline Pilot and had to get medicals for close to 30 years. I will have yet to meet anyone else in person like me in this condition I have.

Your new job is so great. You receive a lot of love from people with disabilities.

I'm happy I found this video, it's helping to educate the ones around me since I'm also xxy klinefelter. I hope one day I can find the help I need. Thank you for sharing

This person has similar physical characteristics as my brother. It's awesome to see how this syndrome varies from person to person.

How many of you that have this condition feel lonely and been wondering for so many years wtf is wrong with my body and personality? Since a kid I knew I wasn't a normal male but finally at 41 years old I'm finding out the name of this syndrome. Wow lucky us with this syndrome are we supposed to feel special for having this?

I was told I had Klinefelter’s syndrome after I had testicular cancer. Was married at the time but split as wife was an evil person saying I wasn’t a man anymore. I hate injections, so I have tried all the treatments but couldn’t get to grips with them so I have to have the injection every 12 weeks. I also have a few other health issues. Osteoporosis in the spine. Inflamed Spleen to date 28/9/23 it’s 20cm a normal size spleen is 13cm. It would be great to have a support group in the Uk 🇬🇧.

This guy is basically me. I reckon we’d get on like a house on fire. XXY are my people aha

I have an invisible disability. I had a stroke and emergency brain surgery. Surviving is only part of it. My brain has a lot of damage. Left side on my focal lobe which is the area that affects memory, speech, problem solving. SOOOO I GET IT.