Doctor discusses Chiari malformation

This is the same doctor who operated on me and saved my life as a baby. I literally owe this man my life today

I love this Dr. !! He did surgery on my son at the age of 2 months and a half to correct a skull deformity without any complications whatsoever!!His loving care towards my son will always stay in my heart!! He is the most honest down to earth Dr. i have ever meet!! May God bless this AMAZING DR.!!!

I just wish more doctors actually understood Chiari. I have had one ignorant physician after another. And they all treat me like I'm a liar. Even though I have 2 MRI's 5 years apart that show the degree of herniation has worsened, and I have restricted csf flow and I continue to develop more symptoms and my current symptoms continue to get worse. My hands are so weak and sore. I can barely do anything anymore. I'm in so much pain and can't tell you the last time I didn't have a headache. All I want is a doctor that friggin cares.

Dr. Mc Comb saved my life! 2x . thank God for him! He's the best. Always nice and friendly to me to this day!

I’m basically a teen with Chiari one malformation type 1. I was diagnosed with it at age 7. It Has caused me pain in my family. Most the women in my family suffer from it including my mother and sister.It feels awesome that people are actually talking about it !

I had chiari and had my surgery @ 8 yrs. old. My symptoms consisted of: migraines, vomiting, and dizziness and loss of balance. Thanks to all the doctors who perform this surgery.

I've had this diagnosis for many years. I also have a syringomyelia related to this. I have scoliosis and many spinal issues. I have had symptoms for most of my life, esp. regarding headaches and peripheral neuorpathy as well and lost of feeling completely of lower extremities causes falls and I drop things and have difficulty with motor functions. No surgery was ever offered to me. I went to two surgeons...one (orthopedist) that found this and wanted to just do therapy and treat my pain symptoms. Then I saw another highly regarded neurosurgeon that just told me that yes I did have the diagnosis of Chiari I malformation with syringomyelia accompanied by bulging and herniated cervical and other areas in my spine. But he was too busy for me and fluffed me off. He had medical students with him that day and was too busy for me...but not to busy to take the huge fee he charged me for the useless few minutes of time he spent with me. I am completely disabled now and homebound. No insurance. No income. No way to get help anywhere. I'm agoraphobic on top of everything else. So I just pray to die soon. I'm so happy for these young people that are being diagnosed and treated by this and other surgeons at a young age so they don't have to suffer the painful life I have led. I was a nurse....so these dr's with dry or withdrawn personalities are some of the best. They learned coping strategies as interns to deal with the harsh stress and long hours, not to mention the massive amount of pressure from patients and their families with the responsibility of lives in their hands. Nurses are responsible for all of the dr's decisions and orders...it was us that had the responsibility to catch all mistakes, catch all signs and symptoms of any difficulty or problem, to act quickly and responsibly and at the same time calling the dr. to tell them what was wrong with the pt's and what we needed to treat them and get dr.'s orders for all the patient's needed. Nursing was the hardest job I could have ever imagined and if I hadn't been so loving towards others, and very organized and able to multitask and be observant and thorough I wouldn't have been able to make it as a nurse. But it killed my little framed body with it's many medical problems. So don't forget to thank your nurses all of you that get to have medical care!

im trying to get an approval for this doctor right now he is at chla . But man i dont think we will get him.

I wish I had known

I wish I had type 1 so that my Chiari could be treated easier. But I have type 2, and doctors have determined that surgery would be too risky.

Will go ahead and ask. I was diagnosed with Chari 2 over 9 years ago. Also have severe spinal stenosis and 3 other conditions . My neck has been popping loudly for a few months and now have over an inch hole on the left side of my neck. They have been wanting me to have ACDF C3-4 surgery for past 4 years. I am on disability and can barely afford the rent. Also have to pay for parts of the medical. Worse part is the out of control twitches. The CBD pain rub an clonzapam is helping to a point. Was getting epidurals which was helping until my insurance was changed. Where would I go to get info on the hole in my neck and do you know of a minimum evasive surgery?. Am thinking of going back to physical therapy. Have 16 medical conditions My head is shifting left

Or or could be a sacral tarlov cyst

I have congenitial chiari malformation now syringomyelia was 5mm 20 yrs ago and To date have asked for help Om diagnosed on Many MRI no one will help me

This guy was my neurosurgeon twice. He's rather dry, but one of the best at what he does.

Who is this doctor and Where is his office? My daughter has been diagnosed and it causes memory loss and severe headaches.

I think that I’m not being heard by Vcu or any drs for that matter..🤕🗣🌬🧠

I was Decompressed back in 2008 when I was 20 and it did not do me any good for my chronic migraines or my other types of pain either. Interesting that he mentioned Scoliosis because I also have that as well. My orthopedic surgeon who did my Scoliosis surgery thought I had Chiari since day 1 and he was right. He thought I had it since my Scoliosis is not a typical Scoliosis and out of the probably thousands of people he has performed on he said he has never seen curves like mine. My Neurosurgeon that performed my Chiari Decompression surgery said that Chiari does not cause Scoliosis. Shows how much he knows and he is supposed to be one of the best neurosurgeons in the country!!! Dr. Iskandar if anyone wants to know. He is at the American Family Children's Hospital or UW Hospital in Madison, WI.

What is his name and isn't he in Florida!?