Prednisone Withdrawal | Adrenal Insufficiency

Published 2019-03-19
Prednisone Overview Video:    • PREDNISONE | Moon Face, Acne, Insomni...  

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My name is Samantha Wayne and I have been creating advocacy videos on YouTube since 2009. I created Live Hope Lupus in order to create a space where those with chronic illnesses could get information and support. Please subscribe to follow me along on this journey!

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#lupus #prednisone

All Comments (21)
  • @Warriorgirl777
    Took 50 mg for 5 days haven’t been the same since. Bad panic attacks, racing heart, tremors and it’s been a almost 2 months it was for an asthma flare up. The ER doc gave me the prescription and I wish I never had taken it.
  • @kaileefrenn4526
    I was only diagnosed with Lupus at the beginning of this year. It sure has been a major change... I was very involved in soccer and my freshman year of high school was going pretty well. When things turned sour I just had to quit soccer but.. I've started to adjust. My doctor has tried to take me off prednisone twice already... we are trying a third time with a very slow taper! So far I'm down to 12.5mg a day from 20mg. So far everything is going well. As I'm just starting my Lupus journey I find your videos very informative and helpful! You are giving me hope and for that I thank you :)
  • @sandydevin8580
    As always, you are very clear and informative. Thanks for teaching. My experience with corticosteroids - prednisone, triamsinolone is that it causes muscle/soft tissue atrophy. Any future trauma, fall, punch sustained pressure, results in missing tissue. An anesthesiologist I had told me he also cannot stand for long periods, due to taking corticosteroids.
  • I'm weaning off of Prednisone now, used to treat Uveitis. I noticed that I've been very tired, having trouble getting up in the morning and needing a nap after work. I've frequently asked myself "what's wrong with me today?" So this is good info to have.
  • @heatherw.671
    I developed an autoimmune illness from a vaccine. My immune system started attacking my own body and I suffered inflammatory arthritis through my entire body, swelling in my lungs, eyes and even had my heart impacted and swollen glands. Pain head to toe. I've been on prednisone at various levels for 2 years. I finally got remission of my immune disease with hydroxychloroquine, methotrexate, stopping all sugar, and daily exercise. After the remission I started weaning prednisone. Irs been a nightmare. I was actually nodding off as this video played because the fatique is terrible. My TSH levels went up too over 22, which means my thyroid isn't working, and I've been having narcolepsy symptoms, loss of appetite, loss of sex drive, depression and flu like pain. I just struggle to get anything done...I can't focus and my memory is terrible. I also developed a horrible rash on both hands and my leg. I'm almost off them...down to half a milligram, but I feel terrible and I feel my original illness again...only not as intense. Idk what to do.
  • @danaconley1123
    my mom was on Prednisone for 40 years for LUPUS & some dumb Dr. told her she didn't need it anymore! After 3 days, she was so sick she ended up in the hospital! Her regular Dr. flipped out when he found out why she was there & put her right back on it!! Needless to say, while she was in the hospital, my dad got so mad he walked right into the stupid Dr.s office & completely lost it! He went so far as to say "what are you doing, trying to kill her? If she dies from this be prepared to go to court because I'm gonna sue you to Hell & back again!" I have LUPUS & I take Prednisone every morning! If I wouldn't, the same thing could happen to me!!
  • Thank you for the excellent and very insightful video. I’ve been in the circle of poison for three years now and it was to reduce swelling after breaking my neck. My teeth are ruined after thousands of dollars invested in them over the years of taking care of them, my right knee is bone to bone, I’m puffed up with water..... my legs leak like water fountains, I’m sick and tired of being sick and tired of prednisone.
  • @bobmcnelis3648
    Been on Prednisone for about 6 years now, on and off, to fight the exacerbation of COPD. I hate it with all of my heart! I feel aggravated and jumpy all at the same time. My gut feels like there are snakes moving around in there, and the only way to ease that feeling is to keep something in my stomach at all times. With that said, my weight fluctuates between 179 when I’m at 2.5 Mg, and 240, when I’m at 60mg. Every time that I get to 2.5,, I get Bronchitis, or something, and the first thing my docs do, is push Solumedrol and then oral prednisone @. 60Mg. Now my Adrenal glands won’t produce cortisol anymore, and I have the fine jewelry ( medic Alert) that warns of Adrenal Insufficiency! I hate prednisone!
  • @aleroogisi4997
    I have lupus. Off and on I took prednisone for 5 years. My doctor finally recommended I wean off. 20 two weeks, 10 2 weeks, 5 2 weeks, so on. That should have took about 4 months, I took 6. Yes, felt worst, one doc wanted to put me back on. I suffered from neuropathy. Years later I found out THAT was a withdrawal symptom. Recommendation; As long as you were on it is your wean time. Ex. I took it continuously for 3 years, 3 year taper down.
  • @jenlynn9295
    Great video.... On prednisone for 10 years... I have lupus so I totally understand.
  • @vernamay7737
    I weaned off of Prednisone. Three days after I was completely off, my Lupus symptoms came back and within a week, I was in a Lupus crisis. I had to go back on it. OMG! Thank you for your videos.
  • @kevdawg55
    So I sort of took my first day (5 pills) oddly because I work nights so I actually took my first pill nearly before bed. I ended up taking 5 total over a 20 hour span and then yesterday had a bitch of a time falling asleep, my heart fluttering woke me up and I was having weird thoughts and acid reflux too. Long story short decided to end it right there. Will I have any adverse effects from one day of use and stopping? It’s been 25 hours now and I feel ok
  • @avtar1699
    My grandma and dad were addicted to this. When my grandma was at her end, the doctors had put her on cold turkey. I remember the screams at night time. God bless her
  • @noor-ij8fk
    I'm on 40 mg prednisone for 2 months now... And after 6 weeks i started to feel weakness in my legs then my arms espiatly in my proximal muscle i detroeted rapidly to the point i was strugling with getting up from chair and couldnt go up the stairs any more i started teapering the dose now i'm on 32 mg (2.5 mg per week) and i feel a little bit better and i little bit stronger now but the pain and fatigue returned from day to day Prednisone has many many ugly side effects and tapering from it, is also ugly long hard road
  • @KT-wb5gy
    Yes I have absolutely had withdrawals. I’ve been on prednisone in varying doses for almost 2 years. I have an autoimmune disorder called Sarcoidosis- I also have Fibromyalgia and widespread chronic pain as well as damage to some of my discs in my back. I’m currently on 2nd week of a new tapering schedule- (was on 15 mg) now I’m on 12.5 mg for another week, then drop to 10mg x 2 weeks, a decrease by 1 mg x 2 weeks until I’m able to wean off (approximately 10/31/21) Hopefully I don’t run into any serious issues requiring endocrinologist intervention… but I am in a lot of pain because my body is so used to the medication even though it has done more harm than good at this point. It’s so difficult. But I can’t wait to get this extra weight off and I know it will be worth it in the end. Thank you for posting this video!
  • @Dsaysalot
    I was diagnosed with a less severe form of GPA. I am dealing with my first flair up after a head cold, and am going to take a months worth of prednisone. Is the short term use of prednisone as severe in terms of side effects?
  • @sharene4362
    I was only on a five day dosage and I have had these “dope sick” symptoms I have been nauseous, fatigued and feeling sluggish with a hard full constipated belly for over a month now. Do you have any suggestions?
  • @kingAndru222
    What style of diet or eating habits should I avoid or stay away from. What's benefits me and what doesn't
  • @LabRat6619
    Nice video, very informative. I have just been weaned off prednisolone recently after a 2-3 month blast of it for sarcoidosis. Life was irratic but very productive on the steroids but now I'm left very slugish with aches and pains. Hopefully the aches and pains are static and not spreading across my body again. It's very worrying that my body might lose its balance and that I might start that downward health spiral that some people experience?