One Person’s Story of Life With CSVD | ABF
Published 2023-03-15
CSVD manifests itself in many ways, but it primarily impairs blood flow to the brain. The effects of this and other aspects of the disease have caused Julie to struggle with reading, writing, and speaking and experience nervous system issues, trouble walking, strokes, and even the early stages of dementia. Because there is no cure for CSVD and treatments are limited, funding research is absolutely critical to saving the lives of people like Julie. Give today to fund research seeking better treatments and a cure for CSVD. Make a donation at www.americanbrainfoundation.org/donation/
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All Comments (18)
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I was just diagnosed, I'm 43, momma of 5 and gma to 1. After years of thinking I'm crazy and numerous neurologists. Finally got a Neurosurgeon to look at my brain mri and explain what is going on. It's really hard to feel or have emotions and the confusion some days are awful. There definitely needs to be more awareness and if I could put my pennies worth in having peace of your mind thru God's word helps me get thru. Praying for all of you precious brothers and sisters
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Just diagnosed at 48. Such a long road to get here. Praying for everyone.
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I was just diagnosed I'm 43 😢
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Thank you. I was just diagnosed. (52 y/o) take care :)
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Prayers for you. I was diagnosed at 55. I’m 58 now. It’s a very emotional roller coaster you’re not in this alone.🦋
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I've this disease. This patient should use omega3, salmon oil and fatty fishes and choline bitartrate with cynacobalamin to reduce this risk.
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I’m 35. And they believe I have this or MS. More tests 😩
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Same I’m 28 and now diagnosed
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I am 35 and have this just diagnoised. Do not know how long I will live
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❤
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Found out Today I found Out Today I have Wide Spread Chronic Micro Vasclar Ischemic Disease I'm 57 years old
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I was diagnosed at 54
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Just diagnosed. I'm scared! I'd been thinking I had MS... I'm 66 and alone.
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I've just been diagnosed! I had a Brain MRI for reoccurring Vertigo. Found out I have CSVD. No real explanation from my Dr. I'm fit, healthy and excersize daily. I watch my Diet. I'm a little scared as my Mother had Dementia & my Father suffered TIAs in later life.. Would love to know more information!
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This is my wife's account she has this disease and is 43yo I am 48 and to be honest I am going to get a MRI because I have had concentration problems since I was in my early 40,s and no one has diagnosed it yet it could very well be my issue to. It would explain alot ........just a side note we both have sleep apnoea so lack of oxygen to the brain perhaps .......
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I had 2 acute and 1 lesser strokes May 8th 2023. November, 2023 I have CSVD. I am 52. Will be 53 in a few weeks. I really would like to know more. The neuro said I will know if I am progressing because I will have more strokes and TIAs.....I feel like I am waiting for the other shoe to drop. There is not much I see about people my age with this......can someone point me in a good direction?
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I’m 49 and got diagnosed but I’ve been dealing with these issues and autoimmune for 20 years so I think it started in my late 20’s. Even though I have to deal with this I’m glad to know I’m not just going “crazy” and losing my mind for no reason. ❤️🩹It’s a death sentence for me but hopefully they will have more research and answers for people like us.
