Multiple Sclerosis Symptoms: MS Hurts!

Really really dr we need translator videos for the people’s or family’s cannot understanding English ☹️ god bless u Dr and really thanks for all

I am a nurse and I’ve had MS >25 years. I am going to ask my husband and children to watch this video. Your explanation of the various forms of MS pain is spot on. Thank you for putting into words the pain symptoms that I have been trying to convey to others for years. Blessings to you.

I moved countries recently and saw a very well regarded neurologist who turned around and said pain is rare in MS and it's all in my head as I must be a very sensitive person 🙈 Let's just say I didn't go back to see that consultant again!!

Unfortunately, there are still doctors who say MS isn't painful, and explaining our pain to them or other people is hard. So thank you for this great video, and everything you do for us, doctor :)

I had a ER visit in Jan, head of the ER told me to my face that it does not cause pain, I almost left and that would have not worked out well as my lactic acid was dangerously high. The education needs to change, thank you for doing these videos

This is hands down my favorite video EVER related to MS. This should be shown to every new MS patient. I never realized itchy hands was relayed to MS so I never told anyone! So much of this now finally makes sense!!!!

I do take pain medication for the pain I do have, and its amazingly helpful. I don't think taking that option completely out of the picture is right because everyone is different and reacts differently to certain meds. Before I was put on pain medication, I had no quality of life. I did everything asked of me- high dose IV steroids, multiple injections, multiple medications (and some that I'm still on). I have no insurance and went into serious debt trying one new treatment after another. I no longer own my own home. I live with my daughter and her husband now. Ultimately, pain medication was one of the best decisions for me, but I know in today's opioidphobic environment, I'm truly blessed to have such good relief. I sincerely hope everyone can find a path that leads to less pain and more movement.

You are the best neurologist EVER. I have learned more from you than I have from my own doc.

Hi there Dr I presented to the er 4 Times with Ms hugs before being diagnosed with MS and was really upset when they said I had munchausens!!!! . So I understand that these pains can be confusing, but I think young doctors should be more educated about pain syndromes in different illness. PS I did receive a full apology from my NHS Trust. I am now being treated by a great neurologist a Dr Gabe De Luca here in the UK.

Dr Aaron, I appreciate this clarity on the various pains of MS. I have had bilateral leg pain constantly on a daily basis. In my 20’s the first unusual pain was an episode of trigeminal neuralgia treated with Baclofen then both arms with numbness tingling to be told that was carpal tunnel. I have had the electric shocks with turning the head side to side not much with extension or flexi on. Your teaching on this top needs to be submitted to Journal of Medicine and include a copy to be submitted to the MayoClinic maybe they could start to rewrite MS symptoms including pain to educate Dr’s that are not informed.

Cannabis has helped me immensely, I hope you have access. I have all of this, but two. Good luck to you. 😢

Great video Dr Boster. You mention that trigeminal neuralgia is one of the most intense pains that a human being can experience. I've been hospitalised with it, together with the MS hug and also what was far more painful than my particular experience of trigeminal neuralgia - muscle spasms in lower back, which were believed to be due to an old L5-S1 disc injury and later diagnosed as cauda equina syndrome. Since being diagnosed with MS, I begun to wonder how much MS impacts the chronic pain I suffer from the disc injury. In other videos you advocate exercise, another great piece of advice. I've found that while it may sometimes be painful to move, exercising the muscles can often prevent the pain becoming worse. Thanks for your awesome work!

Dr Boster my wife was diagnosed a couple years ago and she isn’t receiving very good care here in PA, we fear her ms is progressing and they aren’t even taking it seriously and who knows how much of her life is being wasted by their inaction and inability? Do you see out of state patients? Is there someone we can talk to to find out if it’s even a possibility she could see you? She loves watching your videos you give her hope! Ms sucks man! Thankful for people like you who make such a difference in people’s lives.

Of course, we feel pain! In different places in different way. You really explained it well! Thank you for understanding us Dr. Boster.

Best video to calm down someone who is just afraid of having ms

I am based in UK. DRs have asked me if I experience pain. The definition of pain with them and with most of the public is not clear and that makes things confusing. Thanks for letting me understand that my spasticity can be defined as pain. This helps with my interaction with the doctors here.

I describe and compare the ms hug to being squeezed by a boa constrictor while trying to breathe through a coffee stir straw.

I do not have MS but contininue to learn from Dr. Boster's videos, for my cousin with MS. Thanks for another very informative video.

Good morning guys! Just wanted to say that it’s great to have such another wonderful big family here with Boster and you guys! Have a great days everyone. Try to Keep our heads up and keep moving forward

I ran into a young ER neurologist, who believed MS doesn’t cause pain the first time I had to go to the ER for a relapse because I had a very long wait to get into my new neurologist when I moved to a new state. I was shocked when he said “MS actually doesn’t cause pain.” I just told him “let’s move on,” but almost immediately afterwards I wished I had asked him why the National MS Society has a web page on pain if MS doesn’t cause pain. Thank you for making these videos. They are very helpful to keep informed about types of pain other people with MS may have so I can be a good advocate for others too. 🧡🎗🧡