My Leg Won't Stop Shaking (Reflex Sympathetic Dystrophy) | Our Life
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Published 2021-11-10
This award-winning extreme medicine series looks at the work of pioneering medical teams at London's Great Ormond Street Hospital and follows the progress of young patients with extremely rare childhood conditions. In this episode, a team of doctors, physiotherapists and psychologists try to work out why a seventeen year old girl's leg is shaking wildly and painfully - and how to cure the condition.
This film was first broadcast: 28 Mar 2007
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All Comments (21)
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As a 14 y/o girl, this makes me realize how lucky I am. I don't appreciate simple things as much as I should. Jessica is very strong, I wish her all the best...
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That poor girl's face is so red from all the pain...it breaks my heart...she is so strong...and I am so proud of her
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I have lived with CRPS/RSD for the last 3.5 years…. I got it from a car accident in June 2019. The extreme pain, allodynia/hyperalgesia, tremors, muscle spasms, temperature changes of the limb, swelling, and everything else that goes along with this condition is absolutely terrible. It is the worst pain I’ve ever experienced in my life, and it is so incredibly misunderstood that most doctors and medical professionals don’t know how to treat it. I’ve faced medical gaslighting, doctors telling me I’m faking it, over exaggerating, that I’m being dramatic… when they have NO idea how much pain I go through every day, all day, 24/7… I really empathize with this girl… nobody should have to live with this level of pain 😢💔
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In a science museum years back, there was a metal plate to put your hand on that would stimulate the nerves for hot and cold. I don't recall the cold, but the "heat" part registered like you had your hand on a hot iron, yet as soon as your hand was off, there was no redness and no lingering sensation of any discomfort. As kids, we had to make it a contest out of it to see who could leave their hand on it the longest. Each of us shared the same strategy. We concentrated on repeating to ourselves that we were not being burned. That no harm was being done. The moment we broke our concentration, the pain registered. It was a lesson in mind over matter.
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Actually MythBusters has proven that screaming when you're in pain actually lessens the pain, particularly if you're swearing!!
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She's just 14, i cant imagine the amount of pain she is going through let along trying to figure how to control her pain. She is a very strong person. I would've cried and scream my head off at that age. I hope she is all well. 🥰💜
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As a doctor, I found this heartbreaking to watch. One thing that came to my mind for therapeutic option was electroconvulsive therapy (ECT), since a major part of the problem is in the central nervous system. Then I read that this has been studied, with some supporting evidence but only from case reports. In any case I am glad that she is better and I hope with all my heart that she will have no relapse.
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This condition is so crazy to me, I can't even imagine being in such a huge amount of "unexplainable" pain, it's just wild. I hope it gets a universally useful cure and that people won't have to suffer through so much of it in the foreseeable future ❤️
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I have RSD in both legs and when Jessica said “the pain hasn’t gone away but I’ve just learned to cope with it and not let it get to me” that made me so emotional. I had to do so much physical therapy to walk again and it basically trained me to dissociate through the pain. The pain is always there in the background. You just learn to tune it out like a static on the radio. I wouldn’t wish this condition on anyone.
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I had a friend in high school who had this same condition. Same leg even. She would beg the docs to just cut the lef off. It was heartbreaking. This patients are really strong people.
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i dont understand why they're telling her not to cry/scream. she's obviously frustrated and in pain, and telling her not to feel those emotions is kind of toxic.
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I am so happy for her. As someone who deals with intense pain daily I can see how truely hard she fought. Praying for that same strength myself. Congrats Jess! ❤🎉
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telling her to stop screaming and stop crying all the time really rubs me the wrong way.
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It's hard to watch her trying to walk normally, and having to pretend that she's not in agony with every step. Makes me tear up and made a realize how blessed I am to not have to go through this condition. So much respect for Jessica. She's such a strong young lady, overcoming a tremendous obstacle with such grace. I wish only blessings and kindness to her for the rest of her life.
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Wow. What a champ. She is so freaking strong. I’m so happy for her. She fought so hard. Amazing work with the physiotherapists as well. I hope she’s doing well.
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What a fighter this girl is! She’s more of an inspiration to people out here going through different things than she will ever know.
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Nerve pain is the worst. She must be a really strong person to fight through this with such determination. I'm happy she can go back to her normal life now, and hope she will never have to experience that pain again
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this makes me so emotional. she is such a strong, brave, and determined girl. she deserves so much love and affection.
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How strange this happened to her. She is amazing and learned how to cope very well! Nerve pain is extremely painful and to teach her brain to cope is remarkable really! Her youth sure helps and the care she got shows you can overcome such wonders in this world. I’m praying it heals completely stay strong girl!!;) wow
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I could hold my tears back till the end but in the end seeing her walking back home i couldnt help crying.😢😢😢😢i wept for you jasica...