New Medical Equipment (4/11/17)

Its okay Jaquie, if you're ever behind in vlogs, we all know why. We know you wouldn't wish it to be that.. but rather your body just isn't allowing you to upload any faster. ❤️❤️❤️

130 resting heart rate. That's over twice mine. That really puts into perspective for me how hard your body has to work!

I don't do infusions, but I really need pink pineapples in my life!

Yaaay these vlogs are the highlight of my day when I'm sick. So inspirational ❤❤

Sorry for so much going on at one time! Hope the biopsy goes well! YOU GOT THIS! ❤️

Good luck with the biopsy, hope it will give you some answers, best wishes from the UK xxx

I like the new uploading scheduled. I can wake up, make breakfast and watch your vlogs while I eat and start my day :) Your new infusion bag pattern is adorable! I love the little pink pineapples. Best of luck with your bone marrow biopsy! Sending prayers and well wishes

Good luck on your biopsy!! I'm sure you'll do great! <3 to you, Judd, and Harlow!

If your behind we al get why ❤️❤️

i honestly love watching your videos

Hope the biopsy didn't hurt too much. I've heard they're not too awful. Judd, you've got a pretty good gig, getting fed chicken, veggies and cookies and playing video games.

I have this app called medisafe and I recommend to you and all other Spoonie's because it sends me reminders for medications and treatments so I don't forget plus I can track when I miss my meds

I love your vlogs ! Don't worry about doing a day behind , it's an unrealistic expectation for the same day . You're so positive I love it . Also your relationship with Judd is so sweet .

Hi I'm so glad you're home and feeling a little bit better! I was wondering if you and your mom could talk about what it was like growing up with chronic illnesses?

Hi Jaquie,Do you think you could use the hydration back pack for feeding pumps and formula too? X

Love your new pack, you are very good at your medical treatment. Hoping for improvement where ever God grants it with lots of blessings. Dinner looks yummy, how do you do with baked potatoes? They are so easy in the microwave, we find if you ever do them put them in aluminum foil when done cooking and let it sit on the counter for a few minutes while you finish putting things together. This makes it taste oven baked fresh so the skin is tasty with lots of good vitamin C, it is a life saver in simplicity even if you want to make mashed potatoes you can just scoop out of the skins and mush up however you like, less fiber and vitamin C but certainly easy and great. I hear sweet potatoe fries are great too and Harlow can have some :) Best wishes to both of you and the new job! Blessings always!

You are such a strong gal. yall are awsome.

I've heard about EDS from another Aspie, i wonder if it has something to so with Aspergers.

So glad you got a good night sleep. Always key to having a better day.

I have a question, or maybe more of a suggestion in a way, based on you mentioning your neck and hip pain. I also have EDS and I go to a prosthetist every few months to get orthoses and just check up on how the ones I have work. I also get a compression suit made that helps with stability of my joints. It won't work for neck pain, but it could help your hips. Is it something you maybe can talk to the doctor that help with your treatment related to EDS? I don't know how bad your EDS is, but I know that with mine that causes multiple luxations and subluxations a day it's a great help to have a suit that keeps everything in place. I think that the company that makes the suits are called "Camp Scandinavia", and the actual suits are called "Elements Body".