Orthostatic Tremor

Dr. You are an earth angel. I’ve had very similar symptoms of all tremors you have been talking about. Listening to you I feel it’s the ot tremors I have. It becomes worse when I’m in company because I become anxious and panic with fear. Because I think I’m going insane. Now that I have a better understanding of what’s happening to my body helps me deal with the symptoms on a more calm basis. This all started the week my mother passed away which is now 18 years ago. 😪 I have mentioned these symptoms to doctors over the years and it seems to fall on deaf ears. Thank you doctor for all your research you are putting into finding medical knowledge .🙏🙏🌈🌈🦋🦋🥰🥰😇😇🤙🤙🌻🌻

Wish my Dr. was this Cool.

I have been diagnosed with OT and all you have said is so true. Unfortunately the medication isn't working very well for me and we have had talks of doing DBS which I'm unsure if to go ahead with. Thank-you for your talk about OT and hopefully it will be understood by more people.

My mother is 83 and has been a T1 Diabetic since age 16. She, all three of her siblings and her father all have (or had) tremors. She was diagnosed with OT about 10 years ago and can currently only stand for seconds (even with all types of strategies such as shifting feet, walking in place and using a cane or walker.) She also has Grave's Disease. When she was being treated for the Grave's Disease, the treatment accidently destroyed her entire thyroid function instead of just lower her thyroid function back to a normal level. She is currently on thyroid replacement hormone as a result of the failed Grave's Disease treatment; she has an insulin pump and is classified as a Brittle for her lifelong T1 Diabetic BUT she feels like the OT is by far her most difficult diagnosis. I didn't realize vision might have such and impact on the OT. She had cataract surgery 20 or so years ago and claims that her vision is the only thing on her that works perfectly....but she has one eye adjusted for close up vision. Could that be contributing to the OT? Her symptoms did get progressively worse in the past 20 years. She did have shakiness before but that was only when her blood sugars were too low. I should say that her health is excellent for her age and if she could stand, she could get out more and even travel again.

Wow! I am so happy to find this presentation, I have been suffering from these exact symptoms for about 2 years and am currently waiting to see a neurologist. I am going to find your FB page and others with regards to OT. Thanks again love from the UK.

Thank you so much for your video, explains this disorder so well, I am so frustrated and so annoyed with this disorder, so many people just don't get that one can walk miles, but trying to stand at the kitchen sink whilst washing up, or standing chatting or standing a qué is so impossible Trying to explain to someone, who asks "What happens if you try standing still" Well, I can't, "What will happen if you do?" Well, I suppose the nerves go haywire, up and down through the spine, the causing the truncal muscles to spasm, eventually unable to to stand up in a straight position so the body begins to flail, try all I can and the only way it gets resolved is moving, pacing the floor, standing legs apart, bouncing on leg type movement... It's just crazy...

Thank you very much Dr. Sullivan. It was helpful. You explain well. God bless you.

I would love to have OT Zoom meetings. My condition is deteriorating bad, Please consider especially for people that live alone. Thank you

My mother has this. Getting worse as time goes by.

I also have problem in walking, my hip and knees have gear phenomenon, fatigue comes quick when walking short distances..... my brain literally screams "Sit down ffs"! Ím a 47 year old male

Thank yuo so much

Thank you for putting stung this video. OT is a progressive disease. I relate it to the Vestibular problem Mal De Debarquement where you can not get your legs underneath you. Mine has progressed so far as to when I am sitting I will get the trunk and upper body oscillations as well. I agree there needs to be more studies and hopefully with a voice like yours it will become more recognized.

I was diagnosed by a GP with Parkinson’s. later by a neurologist with ET and later by another doctor with ET but more. My hands will have tremors, my head will have tremors, my feet continually move when I am sitting down and my legs will have tremors when I stand for a few minuets. Is it possible to have ET andPT at the same time. Doctors are having a hard time with a positive diagnosis.

Loved it

Doctor please can you make video about medication which can help to relax tremor!👈🏾👀🤝

My mother has this and it has gotten progressively worse over the years to the point where now i need to carry her. She intermittently loses all use of her legs. It is horrible and heart breaking and doctors are at a loss to help her.

What’s the medication she mentions at 24:50?

I’m interested in a video on coping with OT. Also interested in finding a neurologist who specializes in OT—an “expert”.

Started in 2009. During A-Flutter (heart stuff). It is getting worse. Difficult to put in screws while standing, keyboards are a specific problem, and I swore off step ladders...

Thanks a lot doctor for the usefull information. I am 63 years old and I suffer this symptom for the last almost a year. It apears more when I am nervous. The treating doctor says that it Parkinsonism and gave me Pexa XR and Rasajilin and still I am taking them. The doctor also advised to do excercise. I feel a little better, let say 40% improvement. But I feel that my problem is closer to Orthostatic Tremor rather that Pakinsonism. I also have a small issue with chosing word while I speak particularly during meetings etc. What could be your advice?