Twin-To-Twin Transfusion Syndrome (TTTS): Nicole's Story

What beautiful children ❤. My father was born in 1942 as the surviving twin from a twin to twin transfer . At the time, little to nothing was known about this condition so Dads brother did not survive even though he was over 7 lbs. Dad, by sharp contrast, weighed 1 pound 1 oz. They were born at home in a poor farming community and the doctor didnt hold much hope for Dad. He told my Great Grandmother to make him warm and comfortable that he wouldnt survive till morning. My Gran told the doctor where he could stick his ideas and wrapped Dad in soft lambs wool , tucked him in her best roasting pan and put him in the warming oven of her huge old wood stove. (A sort of cupboard built into the stove away from the fire where food was kept warm). She fed Dad withnan eye dropper and he lived in his snug little nest for the first 6 months of his life. People came from all over to look at the impossibly tiny baby sleeping in a roasting pan 😂. Today, Dad is 81 and one of the tallest men in his family! ❤

This happened to us. My daughter lost the first baby in utero. The second baby was 17 ounces at birth and spent five months in the NICU. She made 5 pounds, they sent her home with no apnea monitor. She died two weeks after coming home, from SIDS, they said. After breast feeding (pumping) and bonding with her for 5.5 months. My daughter was inconsolable, and losing two babies altered her deeply. She has a little girl now, and that baby girl healed her heart. We are SO thankful.

I’m a NICU nurse and there’s so much we can do now. The smaller ones usually end up being very feisty. Big attitude in a tiny body. They catch up to their sibling surprisingly quick.

I sadly lost my two little boys to TTTS. I'm so happy the doctors were able to save your lovely boys❤️

My identical now 26 year old sons also had TTTS. We were number 66 of the laser surgery done by the inventor of this life saving procedure. His name Dr. Julian Delia. He fought to have his amazing technique over the placenta recognized as the life saving procedure it is. All the doctors using this procedure have him to thank.

My twin identical twins past away with this same syndrome on March 6, 1989. They would have been 34 years old now. I'm so thankful for your story and your boy's are beautiful and amazing.

hats off to two wonderful parents who never gave up on their children. beautiful story

My 26 year old identical twin boys had twin-twin transfusion syndrome. We had an emergency c-section at 33 weeks. They were 2 lbs 3 oz and 5 lbs 11 oz. They are both healthy men now. They told me to prepare because they didn't expect them to be born alive.

I was diagnosed @29 weeks, and my twins were delivered about 30 hours later. My donor twin passed away in my arms 3 hours post delivery, and my recipient twin survived and is now a beautiful 22 year old young lady. I remember the silence when my little twin Devon Grace was delivered. And I remember the angel babies in the NICU during the 8 weeks my survivor needed in hospital post birth. It was the most bitter-sweet, life changing period of my life. But I do feel so blessed

My sister and I had TTTS and she survived as well. We were born in the early 1990s. There’s only one picture that was taken a few days after our birth and while we were both very small, I was much smaller. I was pale and lifeless while she was red all over and her head was huge. I needed blood transfusions and she had to have blood drained. We have been through so much together. She’s my best friend.

I’m a triplet- born at 29 weeks. My brothers are identical and one of them needed surgery. I weighted about as much as a bag of flour. Now we are all happy and healthy ❤ what a beautiful story

I also delivered a set of twins with ttts! It was 1963 and I knew there was a problem but it was never explained to me. I was very young and the circumstances around my pregnancy were terrible. My twins were adopted by a, what I now know, a lovely beautiful couple. It has only been 3yrs ago that my boys were brought back into my life by the grace of my Heavenly Father! Sorry, didn’t mean to go on like this. What have found out is because of the ttts they never left the hospital for 4 mths. Thank you for this information!

My identical twin boys were born at term when I had just turned 17. I'm lucky, borh boys were healthy and good. Today they are 39, and I have 5 beautiful sweet granddaughters. I could not ask for a better life. ❤

Lost my twin girls to TTTS at 17 weeks six years ago. I mourn those little girls to this day and wish I could have had a chance to be their mom.

I had to twin boys with this💔 Spencer lived 16 hours & Samuel lived for 3 days😇😇 They are my angels❤❤❤❤

God, thank you so very much! This is so fantastic. I miscarried two sets of twins. This story makes my heart sing!

It's truly amazing what doctors can do these days! It's so great that you never gave up on your boys! It's incredible that babies are so resilient and strong to keep fighting to live through something so intense!

So glad they both survived. Life without your twin is hard. My twin sister was stillborn and I was 2 months early weighing 3lb9. We don’t know why my twin didn’t make it, she didn’t even get a name because it just wasn’t a thing but I named her Aimee.

MyTTT boys were born in 1998. I lost my donor twin at 30 weeks and my recipient twin was born by emergency c-section a week later. My living son was 4 pounds at birth, he is now 190, over 6 foot tall and I love him dearly, he holds my heart!

My daughter had twin to twin transfusion. They were born at 26 weeks. Dustin was 1 lb 8oz Dylan was 1 lb 4 oz. Dylan was born with CP. They are 21 years old and very healthy. Nicki didn't have the option of surgery so they took out 2 liters of fluid every week until her placenta started to fail. Then they did a c section. Dylan had a 4 grade brain bleed and had a shunt put in his head to take off extra fluid at 1 day old. Thanks to all the doctors nurses and God they both are very healthy happy young adult men.