Root Causes & Treatment of Mast Cell Disease

I think the problem with many PCPs is that they blame the symptoms of MCAS on anxiety and they try to send you to a shrink, hoping all of the food allergies + scent allergies and the other weird symptoms will go away.

My son was a paramedic. He died after being bit or stung on the foot while giving CPR on a young lady. They got her back and loaded her in the ambulance that transported her to the hospital. He stayed behind to help clean up the scene. Within 10 minutes he died in her front yard. Anaphylaxis. He was sooooo swollen. Got the autopsy back and they said the anaphylaxis was SECONDARY to Mastocytosis !!!! I never even knew he had it. But after studying this, after the fact …. He most certainly had almost every symptom. It all makes sense now. It breaks my heart. He suffered so much. #Forever38

40:15 the problem is most doctors are triggered by self-diagnosis

Here's my story... I'm about 90% healed from MCAS, that had me full blown chronic iopathic urticaria daily and only was able to eat 5 things. Took about 1 month to heal myself. I'm up to 2 adult scoops of the D-Lactate Free Probiotics powder. I started out slow because I was that ill. I cured myself, y'all! 52 years of not getting diagnosed correctly and doctors trying to give me pharmaceuticals to put a band-aid on the problem. I studied for 4 years to try to heal myself. I was sick and tired of my eyes being swollen shut and not being able to drink or eat anything. Heal your gut and quit this insanity!

I wish more doctors were like this guy. Unfortunately I learned the hard way how incompetent, arrogant, unempathetic most are. They assume the most common circumstance rather than getting to the root of the problem. Above all they dont seem to care.

HOW MANY on here had Covid Which set off MCAS which they never had before??? This happen to me and a friend of mine.

This is an absolutely horrible existence. I am just learning of this condition after my primary care was not aware of mast cell disease and prescribed prednisone. What a waste of time and needless suffering due to the ignorance of doctors on how to treat this disabling affliction.

This guy is awesome! He just described the past 20 years of my life, doc attitude included! ❤

I had felt I was low in serotonin for decades but more so since covid .. I realized that low serotonin brings out mast cells.. I think it’s the perfect storm .. low vitD & b12 .. I use tramadol for the fibro pain but it also helps my mood as it’s a serotonin reuptake inhibitor.. an antidepressant doesn’t work for me way too strong.. but low dose tramadol helps.. no dr will recognize MCAS! They just say take antihistamines then I tell them I react & can’t take them!

We need to talk about the neuro effects too

Thank you Dr. Afrin for sharing your extensive knowledge on this. We sufferers out here really appreciate you!

Low hiistamiiine diet is the first line of defense for me which clued me into the mast cell problem. I am on my own here in small town Alberta so, these videos are a wonderful assist. I have long covid and I believe it is driven by mast cell activation. My Dr. does not believe nor understand that possibility. I take things that boost DAO and I have less symptoms but sometimes harsh reactivation of symptoms. Polyethyleneglycol is a big trigger for me...it is in many drugs and foods. I walk a fine line and eat a very limited diet, which also causes a lot of eye rolling from friends and family. Oh well. I do what I can for me and maybe can prevent the usual three visits a year to emergency with brutal gastric pain, vomitting and the other thing.

🙆‍♀️ I have just yesterday been diagnosed with MCAS. This has been an over 10 years of suffering on off. This doctor is right...maybe even many functional doctors don't necessarily look for MCAS. Biopsies, I have never done....🙆‍♀️🙆‍♀️

I’d be one of those unfortunate souls 🙋‍♀️ I’m a college student and spent the entire first half of last semester in constant anaphylaxis. So extremely hard to explain to my professors, especially without a diagnosis at the time. I had an epi pen bc this started happening over the summer but I never used it bc I didn’t see the point. I only have two and I was in that state 24/7 for 6 weeks. All I could do was bed rest and antihistamines. Allergist was baffled that I wasn’t using it, but thankfully I never stopped breathing. It was always a tight rope to walk. Doctors told me for years my symptoms were due to anxiety :)

I’ve been using colostrum, I found this has dramatically dropped the symptoms. So much to learn with this disease.

My allergist had not seen my hives and swelling so big. He said You have hives”….wow, ya think! He doesn’t want to go further to see where it’s coming from, the origin of it, he’d rather gloss over it, and inject me with Solair! I declined. I’ve had this for 5 years, but it’s only gotten worse in the last year. Every week it’s hives and some swelling. You would think with Johns Hopkins and University of MD in this state there would be someone who would know about this!

Is there a list of doctors you could share who are trained to treat MCAS?

We went thru this for years with my husband! They could find nothing, but they didn’t try very hard lol. When my husband starting to lose his eye sight, I did some research and he had Ankylosing spondylitis, b27 disease/gene… a gluten allergy . Which sounds so … simple or silly? Cutting gluten and dairy is a good way to start while searching for answers.

I think the common denominator in all chronic illness is immune dysfunction. Most likely caused by the assault on our systems by artificial and toxic ingredients in our food, personal care products and environment

My daughter is in the medical field and TWO YEARS AGO, right after her 3rd shot, (1st booster), she started becoming hyper sensitive to her PPE, especially the vinyl gloves. She is celiac (auto-immune) and was always very careful. Her inflammation skyrocketed, with each contact (an other things she found out later) blistering rash, rapid heart beat, etc. She was pulled out of that environment and was able to work from home while she went from doctor to allergist to nutritionist, etc. It was found she had super high amounts of tellurium in her system???? She was found to have become allergic to ALL manmade plastics and rubbers... silicon, vinyl, latex, etc which is used on almost everything To get the hyper inflation under control, she removed all kinds of trigger and inflation causing foods. One year ago, Finally finding someone that took the time to work with her, it was determined she is hyper sensitive to CORN PROTEIN. Guess what corn protein is in and is made into????? EVERYTHING. Of course GMO and exposed to glyphosate. Poor thing has lost 40+ pounds on her strict diet only to more recently having become sensitive to POLYESTER !!!! so now she had to to warddrobe her clothes, bedding furniture, stuffed animals etc! Apparently, polyester has been reformulated in the last few years and includes CORN BYPRODUCTS!!!!! This has been a nightmare for her. I wonder how many others have been thrust into this hyper-inflamation by the spike protein concentration in the shots.