Elementary: Unlocking the Mystery of CRPS with Dr. Philip Getson, DO - RSDSA

Pretty hard pill to swallow that this lecture was in my hometown where I've suffered without a correct diagnosis until I made it myself a week ago for 15 years. And none of my dozens of doctors could tell me about this lecture. I'd have been there. I'd like to see the guest list so I can check out one of the local Houston doctors in attendance and perhaps they'll understand CRPS, allodynia, hyperalgesia or me somewhat.

6 years since the shooting, and my doctors still argue about my CRPS while it just gets worse. I'm 35. Imagining 35 more years of this gets heavy. I can't thank you enough for these videos!!!

This 100% explains what is wrong with my best friend! Omg! After 13 years that if have known her I now understand what she is going thru. I wish I could show this to everyone her and I know. Maybe they will finally believe she is not making t his up or that CRPS IS NOT BECAUSE SHE IS CRAZY!!! THANK YOU DR. GETSON. 😊

I developed most of these symptoms after fracturing my ankle and have been dealing with chronic pain from 3 - 10 for over a year since the injury. It's frustrating that I was dismissed so often when I brought up the possibility of this being a "nerve issue " by 2 different specialists for several months. Finally in the last week, my podiatrist admitted she believes that I have CRPS. I'm so happy I found this lecture so I know which treatment options to avoid and what I can do to help myself and advocate for myself more when in the doctor's office.

Only 6 minutes in and already provided more answers than 4 years of specialists! I was walking to work and felt a snapping sensation just below my right knee, uncomfortable but not painful. By the end of the day the sole of my foot felt like i had stood on lava and has been that way since ruining my quality of life and preventing me doing things with my kids. Rather than accept that as the cause of my pain, a neurologist diagnosed FND because an exgirlfriend from over a decade ago used to throw stuff at me in anger and that "emotional trauma" is supposedly the cause of my pain and it's "all in my head". I came across CRPS as a condition when looking into amputation as i tried to remove my own toe due to being sick of the pain and my frustration with healthcare professionals. Looking forward to the rest of the video to see what else i can learn. Thank you.

First professional who made me not feel like I am completely crazy... how in the world can I get an appointment with a doctor that's actually smart like this man??

What an incredible doctor. I can feel the compassion you have for people with CRPS. This has given me a new outlook on my diagnosis. Thank you

I'm amazed as my practitioners, in Chicago, basically say life is over, deal with it, no treatment; no cure! Thank you Dr. G....I will be emailing you soon and thank you for allowing this...P.S. I'm a medical practitioner...😵🤯🤞🏼

I got this disease while LIVING in Houston after a fall. I saw about 15 different specialists; not ONE ever mentioned this. I moved to Virginia a month ago, and finally got diagnosed.

I think you sir for caring enough about this disease

As someone who suffers from one of the worst cases seen with CRPS, I say thank you to this doctor!! Such a compassionate and understanding doctor who helped me to advocate for myself and understand CRPS more and actually get better. 4 years of CRPS in 75% of my body, but still going strong. This doctor is amazing, thank you sir so much 🙏🏻❤️

I just made the diagnosis after 3 years of non stop agony. With the guidance of a new pain doctor. With some reading material and advised to research it I'm on my own. Voila! We have nailed it! I hurt now, but today was the best day in three years. My injury was to the GI tract from Covid. A few months later an endoscopy showed it. Now it's advanced neuropathy over all my body except my feet. Even the teeth falling apart! Wow! Abdominal inflammation and spasms. I get hot spots too.There went the joy of eating. Too bad we don't get earlier diagnosis, but go around being told it's in our heads, giving the disease much time to do such damage to our lives. Was a time when they didn't believe fibromyalgia was real, remember? I feel for you, everyone! I need a support group. Also I'll lose disability status with Social Security in a few years. How do I fight with the government with respect to the fact that I'll always be disabled? That's going to be enormously difficult! Anyone have help with aging out of disability status?

"Gabapentin makes you fat and stupid!" Exactly! And then the doctor turns around and says well you are overweight, so that is the cause of the pain. ARGH! Nope. The pain came first, y'all gave me a BS drug that caused me to gain weight.

It's glaringly obvious how educated and passionate Dr. Getson is on CRPS. I appreciate his knowledge and as a non patient of his I still try to follow his protocols. I know his disdain for Cymbalta and Gabapentin but does Lyrica fall in that category as well?. Everyday before taking the pill I wonder if there is something better

SO EXCITED TO WATCH THIS!!! I HAVE BEEN WAITING FOR IT!!!

Thank you so much!! I've watched many videos on CRPS and you are the best!!

Watching from New Zealand, and so glad I have. So many new tips on how to self manage the flare ups well and naturally. I have shared this with our Kiwi CRPS group and I am sure it will help many of us here in NZ. I just wish our hospitals and doctors would get more on board with ketamine treatments here, but we are slowly catching up to the rest of the world thanks to us with CRPS educating our health professionals. As you say, it is the best way to get the disease known in the medical world. Thank you so much for posting this.

I had a smaller "accident" doing some repeated movements with my arms. Suddenly my left arm went numb. The color changed to a pale yellowish in my hand. It was tingling and I could not use my hand , I could not grab anything for 20 min, just before my PT session. So I went to see my PT who unblocked sg in my arm. From that time, I started to have problems in my left hand arm, chest. My wrist is painful and when I move that hand the blood is pooling in, it becomes red, swollen. This is changing with movements. When I explained the color changes nobody seemed to understand because when they saw my hand it was not red. So I took picture to show my PT. I am on medication since. I tried PT, acupuncture, not much relief. Shortly after I started to have burning pain on the sole of my feet. It was almost constant, like literally walking on fire for 2 weeks at least, and on one occasion both of my legs went numb. I could not stand up, I could not feel my legs from knee. I ended up with my left leg involuntarily twitching in resting position, (the same side as my arm). I had brain MRI, negative. In the report some chronic pain syndrome and mentions that there is no explanation to my leg twitching. Finally after almost 2 years I saw another doctor and my hand pain is not improving since. That doctor thought about CRPS. Finally I asked for x-rays, and just got to know that I have a non-union wrist fracture in my left wrists, which never healed. All the professionals missed the diagnose.

Thank you so much for understanding....I was Diagnosed in July of 2018 ...work injury in 2017...2 surgeries in 9 Months....first surgery was done with 3 small insigons... that is what caused my crps. Second was a knee replacement.... I haven't been seen by a Doctor since the beginning of Covid.. im a problem ...because they don't know what to do with me.

Finally a good Dr that speaks the truth!!!❤🙏