I Thought I Had ALS

The likelihood of getting als in one's lifetime is a one in three hundred chance. Cases are also rising. I was diagnosed two months ago at the age of fourty. My first symptoms were body wide twitching. I would also like to add that I'm glad you've been given the all clear. I wish you a long and happy life

I’m 27 and my story is so similar to you. The way my twitching started right above my knee, to the calf’s to starting to think my speech was going bad, going to doctors telling me everything is fine. Been going on for 5 months no muscle weakness or atrophy I’m starting to calm down because almost half a year with no other symptoms other than the occasional/ lingering twitch I would most likely be showing other symptoms by now. I drove myself insane, my wife was amazing through this. I would pace around at night scared I was going to die in the next 2 years and if I even wanted to go through the hardships of the illness. I didn’t sleep for 2-3 months. I would be lying if not some part of my day, ALS doesn’t creep in my mind when a twitch or pop happens, especially when I have the tip of my tongue twitch after I eat or a twitch in my calf that lingers for more than just 10-15 second. I went to a horrible dark place that really scared me and my loved ones. Thank you for sharing your story. Stay strong

Thank you for sharing this. My hypochondria creeps up about once a year. It’s crippling. I think lockdowns and all that crap really jacked people up more than we consciously know…God Bless you and all the other one’s struggling with anxiety. Don’t let tomorrow’s worries rob you of the blessings of today🙏🏼

Thank you :) You've helped me. I had a sleepless night last night over this (usually I sleep like a log). Your message here has made me feel a lot better - especially the stuff about how we can 'give' ourselves symptoms. The weight thing helped too - I've actually put on a little recently, which I usually don't like; now I am very pleased :) Anyway, I'm going to check out Tool now to help me out of the rabbit hole. Thanks again :)

Thanks so much for this! Going through something very similar now. Anxiety is a crazy thing isn’t it!

thanks so much for this, I am an older man so right in ALS territory as were you being in the army and being physically fit. I too had the same experience with constant twitching in my calves, that then moved everywhere. Still no weakness but muscle pain, cramps etc etc. Still going through testing etc.

Wow, this video pretty much sums up my life recently. I've just been diagnosed with BFS after having twitches in my calves for the last 18 months. I lost one of my best mates due to ALS 6 years ago, so when my twitching got worse a month or so or go I was terrified to see a doctor in case they confirmed my worst fears. The last 2 weeks have been been the worst of my life, waiting for test results, seeing a neurologist, etc. Of course the anxiety made the twitches explode in intensity, not to mention my inability to avoid searching Google about muscle twitches non stop. Thankfully after blood tests, MRI, NCS and EMG I was given the all clear and it is like a weight has been lifted. Watching videos like yours and hearing your story gives great comfort. Thanks and take care. EDIT: Forgot to mention, Tool is my favourite band too, was lucky to see them live in Melbourne in early 2020 before COVID really kicked off.

I had the same vibrating sensation started on my feet, then on my legs then my arms. I went thru the same path, went to GP, Neuro and had MRIs, emg and neuro tests. everything came back ok. my neurologist also told me im okay nothing wrong with me. I was give anxiety meds and things started to go back to normal. This also happened during covid. I still have some muscle twitching here and there but nothing that's bothersome. Glad I found your video. Its been 3 years since this happened to me

and I did the same as you searched on google. I find myself in your story in every word. thanks for the video

Thanks dude I really needed this I’m playing basketball right now and I’m fine

My husband started with problems in his right hand fingers. We thought he had a Mini stroke. We went through lots of dr appts and testing. First we were told he has early onset ALS now they are saying PLS. With the diagnosis of PLS he does not qualify for any ALS trails. I so wish he didn’t have this. His seems to be bulbar. I have tried over and over to get them to test him for anything else that it could be. I am happy for you and your wife that yours is not. God bless you.

Man.. I'm 23yrs old. I started having panic attacks randomly about 5 months ago. I first feared heart problems... Then GI issues started. And the anxiety levels remained constant (never had this problem before). The weight loss started and all kinds of things. Been tested like crazy and everything has come back totally normal. My father passed away at the age of 47. I had just turned 17. He passed of ALS. Something that had never been in our family. Lately now, the weakness feeling set in and muscle twitching all over...mostly in my calves. You're right... Going down the Dr. Google road is always a terrible idea. Health anxiety can set in so easily and it only makes things worse. I have yet to go through tests specifically for ALS or MS but I'm fighting through every day.

This made me cry. I have been twitching for 3 months and I’ve become obsessed with ALS and developing all kinds of new symptoms. I have suffered sever health anxiety for 20 years so I’m hoping that’s all I’m dealing with. Thanks for sharing.

I dont want to give out false info but i think one of the key symptomps of ALS is massive weakness like you cant lift 10lbs...so if you can still go to the gym ,work and do your daily tasks..you are fine probably

Thank you, how are you feeling today ?

Im going through this right now its so hard to deal with. It all started with twitching in my left calf (maybe my restless leg syndrome had a part to play) then it hops to my right calf then shoulders then chest. Then it goes numb 3 days ago and i cant feel my muscles on my left side and now i feel little pains. Idk what it is but hopefully its just anxiety als is way too scary. I only get 2 hours of sleep a day. Thank you for this video. Ill never look at google again.

Thanks for doing this. I get muscle twitching everywhere and it scares the hell out of me. I spend hours searching ALS. I have a negative MRI and EMG/ Nerve conduction study, but still get scared every time I have a twitch.

I went through this aswell, spent 6 weeks freaking out with symptoms getting worse and throat going bad, I never did have a test or see doctor and too this day over 1 and half years later in still twitching but I managed to calm myself down and understand I'm OK. For anyone with anxiety it will make you worse I used cbd to help me and it was a god send at that point

Thanks for the video. I have been suffering of severe anxiety and panic attatcks since i discover that twitching is an ALS symtom and I also lost 2 kg in 2 weeks. I saw a doctor and he said everything looks fine, but still need to do the blood test and the EMG. Hast somebody lost weight as well? I dont know if this is due to anxiety or if i do have soemthing

My legs and arms twitch all the time but i have neuropathy..