Understanding the Persistent Symptoms in Lyme Disease | Johns Hopkins Medicine

Getting Lyme when I was 22 changed my life thus far. I got two bullseye rashes in June of 2017 and was treated within the week. I still have extreme fatigue, lower back pain and decreased memory to this very day. Gave up my college aspirations and had to quit my job. It's been a rough three years and I hope that one day I can live life once again and do more than sit on my bedroom floor.

Excellent video! Great to see Lyme getting attention. Our family lived this nightmare of persistent Lyme (my daughter) for too long. We had to come up with the diagnosis and finally take her to a doctor that understood Lyme. Most doctors do not and you end up going in circles.

Finally it seems that true steps are being made to unravel this illness. I hope there will be an actual cure soon, but simple recognition and orevention will already be invaluable. Best of luck to all researchers!

I got Lyme, had a rash that literally spread over my body and flu symptoms with a fever. I then got tinnitus from it that I still have today. I was treated with antibiotics for 30 days, but still have symptoms including knee pain and neurological problems, shaking.

But why not a focus on the people who were never initially diagnosed (A MUCH higher number than those who were) who fall severely ill (where lives are put completely on hold for many years after the immune system allowing the Luke to completely take over) suffering unimaginable pain both physically and psychologically. My entire 20s were spent on my parents couch/bed at their house, and although I’m finally able to stay awake long enough to live on my own and take care of myself at age 29, I’m still unable to treat further than i initially did with my first LLMD, due to my toxic load. I have to slowly detox before killing anything off. 2 years of this. And I don’t remember the last time I had a conversation without having word recall issues, for the simplest of words. I went to the most difficult high school in my state and a top 15 university...please help the millions across the world that had more similar to my experience, but can’t afford not working and living on their parents’ couch due to a year-long “Lyme flu”

I got treated for Lyme months ago, but it still seems to be getting worse. My joints and eyes hurt. Sore muscles, fatigue, and losing my eye sight as well.

Nonetheless I’d like to thank you very much for your dedication to researching Lyme in whatever capacity/type it may be. I don’t understand how more hasn’t been done by now when millions of people are suffering and for some reason there’s still some sort of taboo, as western medical practitioners were not properly educated on the disease in med school. Awareness is key so thank you for all you do and for putting videos that legitimize Lyme disease online!!

In France, they don't reconize the illness. Country of Pasteur and lobbies...

Not everyone gets treated right away after tick bite and rash and the difference is huge everyday this infection goes untreated. There is no talk about this and there only treating one size fits all 14 day your cured treatment that’s the PROBLEM!!!!

When did Chronic Lyme Disease become an accepted diagnosis? For years, I’ve read that the infection itself does not persist.